Wednesday, November 10

The Beep as far as I know it...

I had some emails from people that suffer from Tinnitus and some of those are "new" to the problem and asked questions. It was also asked if "it was all in my head" by others.
So for those who want to know: info on the Beep
I went to a specialist in nose, ear and throat problems. I had a constant ring in my left ear and had some dizzy spells. Perhaps it was Meniere's: a inner ear problem with no known cure. It was not.
I had an E.N.G. to check if my balance was okay. It was. An M.R.I. to enclude any medical problems such as damaged nerves, obstructed bloodvains. All was fine.
I had an audiometric test and though normal, they found a little ditch in high tones, both left and right. The sound of my Beep is exactly the ditch they found. It could be, it is caused by noise-induced hearingloss years and years ago. The brain can react to such hearingloss by producing a sound, one can no longer hear through your ears. The brain doesn't know that the sound is no longer there. Like someone who still feels his toe itch after the leg is amputated.

So, no medical solution possible, but you could try to re-train your brain. I started with a tinnitus masker that produced a white noise. Plan was that is neutralized the Beep. It worked a bit but the thing itself (although tiny) hurts my inner ear ánd not unimportant is very expensive. Besides, I beep in both ears now.

Another part of retraining is the therapy. Wikipedia says: (ignore the highlighted words)
Tinnitus retraining therapy (TRT) is a form of habituation therapy designed to help people who suffer from tinnitus (ringing ears). TRT uses counselling to explain to the patient how a combination of tinnitus retraining and sound enrichment can end their negative reaction to the tinnitus sound, and then reduce and eventually end their perception of it.Tinnitus retraining therapy (TRT) is a form of habituation therapy designed to help people who suffer from tinnitus (ringing ears). TRT uses counselling to explain to the patient how a combination of tinnitus retraining and sound enrichment can end their negative reaction to the tinnitus sound, and then reduce and eventually end their perception of it.
...

My Beep bothers me the most when all is quiet e.g when you want to sleep. Sometimes it's so loud that I can't hear properly and then it is heard even over loud external sounds.
Depressing is that it'll never be quiet in my head again.
Mostly I handle it well, sometimes it makes me sad (when it's loud) and frustrated. I cried a bit on one occasion when it was really REALLY loud for a week on end.

For those who want to know what I hear: I downloaded the Beep from a cd with 150 (!) tinnitus sounds. Mine is slightly higher but just as annoying
pieptoon.wav

The nasty questions in the questionnaire came from psycho girl, who gives the therapy together with audio girl.
I guess she wants to determine the state of mind of the groupmembers, but if you ask me the questions are for people with other issues than Tinnitus! It can cause serieus depression but hearing voices??

Fellow tinnitus sufferers are welcome to email me: I try not to whine too much on my blog :)

4 comments:

  1. Nasty. My daughter-in-law is having this problem as well. Funny photo tho! Good luck to you.

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  2. Getsie zeg, dat is wel iets heel vervelends. Ik hoop voor je dat die therapie de oplossing is. Ik heb naar de piep geluisterd, wat een misselijk geluid. Tegenwoordig zijn dokters toch zo knap, dat ze dit moeten kunnen verhelpen? Bestaat er niet zoiets als een patientenvereniging waar ze je goede tips kunnen geven?

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  3. Wow, poor you, that beep is really annoying! I hope you can re-train your brain so it will go away.

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  4. Wat een vervelend geluid en dat is nog zacht uitgedrukt.

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